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Life changes -- one more time!

I must share my latest saga with you.

Here I am 64 years old and 22 years into the gluten free life style and still learning.
This last weekend was another show stopper. My husband and I were celebrating our 48th wedding anniversary at our favorite Hotel & Restaurant. As always when I order my meal I ask about flour and wheat and give a strong dissertation about the gluten intolerance and wheat allergy. They came back with a message from the kitchen "no gluten or wheat in Lobster tail with rice pilaf". WELL let me tell you, that was a message I never should have believed.
I was sick before I finished the meal. I missed listening to the band. By the next morning I was in the hospital hooked up to IVs and heart monitors and wishing I never had to eat again. Dehydration is a very serious side affect not to mention the pain and suffering from the nausea that lasted for hours.
We should never take someones at their word -- we should see the label ourselves. My husband worked with the kitchen and the hotel manager. They gave him a copy of the label from the box that says very plain the rice pilaf contained wheat. And, the katsup used to make the shrimp cocktail sauce contained gluten as a stabilizer. 
I really want to stress the strongest possible message to everyone "please" read labels.
If you are as sensitive to gluten & wheat as I am, save your own life, "Do Not" trusting someone to give you to correct information. Check every label and always ask more questions.




Warnings can save your life!

For your health and safety.


Take special care to read all packaged labels on your gluten free foods. If you are gluten free you very well may be allergic to other foods that will create a very dangerous situation for you. Close attention to detail can save your life.
I recently had a very sever reaction to a trace of wheat in a gluten free frozen dinner.
As you can see I posted an article on this blog.

Here are the signs & symptom of an allergic reaction.









Gluten Free / Wheat Free -- Consumers BEWARE!!

If you are a wheat sensitive gluten free person BEWARE of labeling. Last night was my worst night mare. My reaction to this product was critical and life threating. I've been gluten & wheat free for over 20 years and each time I have an incident it becomes more grave. I bought the above item without reading the labeling closely enough. I was very sorry! I can not tolerate any amount of wheat. This label says it is gluten free but the box front does not say it is wheat free. On the back of the box, in very fine print, it list wheat in the allergies section. I do except the consequences of my own actions but I will continue by saying this company and others should be more responsible in regard to labeling. If they are going to offer a product to the gluten free community they should consider the total gluten free community which includes wheat. The front panel of the package should be very clear about it's contents. The notice that the product may contain wheat should be on the front of the package. If it has to be on the back, marketing should take into account the size and boldness of the print.
My warning to everyone who may be allergic or have any medical condition that may include eating a packaged product, please read all labels very carefully.







READ MY STORY!

June 30 ---1st installment to my story.

From my heart and soul to yours.
My gluten intolerance nightmare started in 1986.
I was working a full time job at General Motors Purchasing. I felt sick all day every day. How I got up every morning at 4 am and worked all day is unbelievable to me as I think back. I was very weak and doubled over at my desk in pain but I never let anyone in the office know because I did not want to loose my job. There were many trips to ER. After a while they knew me by name which is not a good thing in the medical world.
Doctors told me time after time that I may have an ulcer or I may have irritable bowel problems from stress. I knew I was not stressed or worried about anything. My family was great and I loved my job.
Finally, I was referred to the University of Michigan Hospital Department of Internal Medicine. Because the University of Michigan Hospital is a teaching hospital, I was assigned to a resident for history and exam before the staff Dr. came in to see me. My doctor of record talked with the resident for his recommendation. My Dr. told me that the resident was ordering a biopsy of my small bowel because he found evidence in the exam I may have Celiac Disease (CD). He also told me he would not have ordered a biopsy because the symptoms of (CD) are so widely varied among patients. There are no typical symptoms. And a biopsy was not a
routine test. My exam was not conclusive. My stomach was very blotted and painful and my blood work showed a B vitamin deficiency with anemia. These symptoms could be associated with many other problems or mean nothing at all.
The symptoms I did not think was important enough to tell them was;
* The start of psoriasis, which my mother had all over her entire body.
* Night vision deminished
* Very tired & weak all the time; I really didn't know how I worked a 40 hour a week job and continued to function.
* Lose of concentration
* Nervous and anxious for no reason
* Can not stay focused
I did learn that any changes in who are and how you are functioning should always be part of your exam.
An other point not in my favor was my weight. I was considered obese. He said the majority of people with CD are anorexic or very thin. I think since 1986 even this belief has changed.
The biopsy was positive. The Dr. did not believe the results. He ask if I would work with him. He gave me a very strict gluten free diet for one month. On and off the diet and 4 more biopsies, he finally agreed CD was my diagnosis.